Pulmonary Fibrosis Foundation

Maureen Connor 

on Facebook

11 years ago

My father is in end stage of pulmonary fibrosis. He is very optimistic and is strong willed person. He has just been put on hospice care and he still is thinking positive. I never knew nothing about this disease until he was diagnose with it. I hope they soon find a cure. 

Kari Gonzales-Quintana 

on Facebook

11 years ago

My mother passed away 2 1/2 years ago. She battled with this disease for 6 years. I feel that the awesome doctors at UCSF medical center and their prescription of Tyvaso was what helped her tremendously. She got to live some wonderful years being able to do her volunteering, spend quality time with loved ones and continue making her crafts. She passed away from lupus complications even though they warned us that Pulmonary Fibrosis could take her at any time. She had the best health insurance out there that allowed for her to... read more

Abbey Stanbrook 

on Facebook

11 years ago

My dad Paul died august 17th this year from it. We all had no idea that within 4 weeks he went from working full time to dying in hospital. It is especially interesting to recollect the doctors appointments and lung function tests that the staff weren't really listening to my dads specific symptoms, and perhaps could have told him to RETIRE when he was first diagnosed. Hindsight eh. Love you dad. Miss you. Xx 

Sheila Gardner 

on Facebook

11 years ago

My Mother-in-law was taken from us two and a half years ago by this disease. It would be wonderful if they could find a better treatment and ultimately a cure. Watching someone go through this is something nobody should ever have to do. Let's hope for some better answers and outcomes in the very near future. 

Beth Young 

on Facebook

11 years ago

We really need a cure. My friend since we were babies really needs to grow old with me. Love ya Debbie. 

Janice Lassonde 

on Facebook

11 years ago

I lost my mother in 1983 from this disease. I am 63 yrs old and last March I was diagnosed with it. There is no cure or treatment for me. It seems not much has been done with research since I lost my mom back in '83. 

Jessica Craig Halgunseth 

on Facebook

11 years ago

I wish I had known more about this disease before my father was diagnosed with Idiopathic Pulmonary Fibrosis. I am praying the awareness is heightened and research is victorious for this disease. I love and miss my dad so much... 

Marie Igneri D'Acunto 

on Facebook

11 years ago

I lost my mom 13 years ago to this horrible disease. She was only 55. She just became a grandma and was never able to hold her grandchildren. I follow your page and commend your foundation. I wish you were around when she was suffering. We were alone, no one knew much about this disease back then. 

Kathy Koski 

on Facebook

12 years ago

I am so grateful that you are here, helping people understand this terrible disease. This is a shout out to My Best Friend & Lover Brent Yeley. We are in it together.