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Pulmonary Fibrosis Foundation
- Healthcare
- Chicago, IL
About this business
The mission of the Pulmonary Fibrosis Foundation is to find a cure for idiopathic pulmonary fibrosis (IPF) by funding research, advocating for pulmonary fibrosis issues, promoting disease awareness, and providing a compassionate environment for supporting patients and their loved ones. We aim to accomplish this by working with the medical community to drive new research, increasing research funding, representing the needs of our constituents in Washington DC through national advocacy, and developing caring relationships with... read more
Location details
230 E Ohio St, Ste 304, Chicago, IL, 60611, United States
Get directions| Weekday | Schedule | Status |
|---|---|---|
| Mon | 9:00 a.m. to 6:00 p.m. | |
| Tue | 9:00 a.m. to 6:00 p.m. | |
| Wed | 9:00 a.m. to 6:00 p.m. | |
| Thu | 9:00 a.m. to 6:00 p.m. | |
| Fri | 9:00 a.m. to 6:00 p.m. | |
| Sat | Closed | |
| Sun | Closed |
We recently found out my brother, age 62, has been diagnosed with this disease. He is on 100% oxygen. I am very unaware of what to expect. Can anyone help me? We are praying for a miracle as well as a lung transplant. Thank you all so much. God Bless.
I was dx'd in 2007! According to statistics I should not be here. But I'm here to tell you that I serve a MIGHTY GOD and, although I am on oxygen and have been for two years, He is not done with me yet. So I wake up daily and thank him for another day. Then I check out this sight for a cure and then all the support groups I belong to and start praying for my fellow suffers of this awful disease IPF. I've been on this site for along time and I'm thankful for all the people that work hard to keep it going. Thank-you
Today is 4 years since this disease took my mom. I hate everything about it
I lost my mother to this disease on March 31st 2012. Im still confused on how fast it took her life. We were on vacation in Florida just two weeks before and she was fine. She was not on oxygen and no restrictions. She got pneumonia and when she was admitted to the hospital it was like they didnt know how to treat this disease. The hospital had put her on a breathing machine and after that it was all downhill from there. Im still so mad at what they did for her at the hospital. I feel that if they knew what they were doing s... read more
I love the conversations. I'm traveling to Cleveland Clinic every 90 days for monitoring for a double lung transplant. Anyone have info or knowledge on registering at more than one clinic. I'm 48 and a teacher in Ny state. I know location does matter for the clinics as far as how many miles away you are. Any info would be greatly appreciated.
hi, my dad has been battling this disease for 10 years and is rapidly deteriorating day by day, its such a heartbreaking thing to see my big string dad struggle to even get up, he has lost so much weight he is almist skeletal. we dont know why he got ipf, he has never smoked and always been in good health, he did however work in a sugar refinery, breathing in sugar cane dust for over 30 years, I wonder if there is any link ?! so many unanswered questions !
It is very important that more primary care physicians become aware of this illness, as they are the front line fighters. I went thru the same thing as your Dad Crystal, back and forth to specialist for 2 years. My primary fibrosis was caused by exposure to toxic chemicals at the work place and I have been fighting the workers comp in Delaware to receive benefits for 3 years. The awareness if this illness is VITAL. So grateful to this foundation for posting and I want to order the bracelets so that people can see them and as... read more
We lost our mother to this disease this past Thursday, After almost 7 yrs of living with this. I'll never get the image of her gasping for air out of my head. I hope and pray that a cure is found so more don't have to suffer like this.
M
Frequently asked questions about Pulmonary Fibrosis Foundation
How is Pulmonary Fibrosis Foundation rated?
Pulmonary Fibrosis Foundation has a 4.6 star rating with 171 reviews.
When is Pulmonary Fibrosis Foundation open?
Pulmonary Fibrosis Foundation is closed now. It will open at 9:00 a.m.
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