UCHealth Adult Genetics Clinic - Anschutz Medical Campus

Beverly Zubke - CDA 

on Google

3 months ago

I thought it was a joke when my PCP referred me here and I got an automatic reply from them that said "We have received a referral from your provider to the Adult Genetics Clinic (located in the Heart and Vascular Center) for evaluation for possible Ehlers Danlos syndrome (EDS). Currently, we do not have available appointments for scheduling. We will keep your referral on file on a 'recall list' and you will be contacted when additional appointments become available. As we receive a significant number of referrals for this i... read more

Jessica Megna 

on Google

9 months ago

I went back and forth with this genetics scheduling team on a pending referral for a PKD screening (literally a swab of my cheek and a referral to a nephrologist) and by the 3rd call to them to follow up on my referral (over a month of time waisted) they let me know that it would be a 2-4 year wait... Absolutely insane. People’s lives are on the line with these types of appointments and not only was this handled in a careless way it was incredibly telling about how this health care system functions. As someone who works in t... read more

Tré Winter 

on Google

a year ago

I have had more than 6 different referrals sent to this clinic by different doctors since 2019. Every time one is sent, I get an automated message saying to try again in another couple years. Calling the clinic often results in rude dismissal. I’ve had several life-altering surgeries and disorders that need treatment. My surgeons have become upset at myself (some within the UCHealth system) that I have “not sought treatment,” something I clearly have no control over. If this was not one of the only clinics in the state that ... read more

Amber Martin 

on Google

2 years ago

EDIT: 2 years waiting. Now my children are being scheduled with Children’s Hospital for genetic testing for EDS. We already have diagnoses and medication controlled Autism, ADHD, and POTS, and a COL5A1 genetic variant that is indicative of autosomal dominant Classic EDS. Maybe your scheduler needs to stick to scheduling instead of assuming I have hEDS. And they have yet to schedule my appointment. The geneticist scheduler misplaced my referral for 3 months. Then, after I FOLLOWED UP, she said I probably have HEDS, but that t... read more

Julia Hellerman 

on Google

2 years ago

it takes a very long time to get an appointment with the UCHealth Adult Genetics Clinic. I expected a very high level visit with providers who understand my specific genetic variation, which is not yet as well-understood as other genetic abnormalities. Unfortunately, instead of focusing on my specific variant, they lumped me in with other variants on the same gene and gave me very generic information about the associated syndrome, as well as prescribing yearly testing that is expensive and unhelpful in my specific case. In t... read more