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505 8th Ave #902, New York, NY, 10018, United States
Get directionsWeekday | Schedule | Status |
---|---|---|
Mon | 9:00 a.m. to 5:00 p.m. | |
Tue | 9:00 a.m. to 5:00 p.m. | |
Wed | 9:00 a.m. to 5:00 p.m. | |
Thu | 9:00 a.m. to 5:00 p.m. | |
Fri | 9:00 a.m. to 5:00 p.m. | |
Sat | Closed | |
Sun | Closed |
I am dying of the worst illness known to mankind. I had two trial treatments that seemed to helped me and felt life-changing that got taken away from me when the trials ended. I begged for HDSA to advocate for me to stay on the trial medicines but it felt like they did not care to, always an excuse not to advocate for me. We need proactive good people instead of reactive people who did not help me when I begged
I could not find any calls for advocacy on social media or their website for significant Huntington's disease research funds
Tried contacting by phone to get information for a patient of mine.No response left two messages It is now one week without redponse.
Ms. Foxx is a gem! So grateful for her collaboration.
Huntington's Disease Society of America (HDSA) has a 2.6 star rating with 5 reviews.
Huntington's Disease Society of America (HDSA) is closed now. It will open tomorrow at 9:00 a.m.
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