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Interstitial Cystitis Association
- Community Service/Non-Profit
- McLean, VA
About this business
Location details
7918 Jones Branch Dr #300, #300, McLean, VA, 22102, United States
Get directions| Weekday | Schedule | Status |
|---|---|---|
| Mon | 9:00 a.m. to 5:00 p.m. | |
| Tue | 9:00 a.m. to 5:00 p.m. | |
| Wed | 9:00 a.m. to 5:00 p.m. | |
| Thu | 9:00 a.m. to 5:00 p.m. | |
| Fri | 9:00 a.m. to 5:00 p.m. | |
| Sat | Closed | |
| Sun | Closed |
As a patient and advocate, I greatly value the ICA as the only non-profit in the US working for the IC cause. Their website was one of my best sources for information when I was diagnosed, and it continues to be a great source for the latest updates on IC research and news. Their online forum is also a great way to connect with other IC patients. Importantly, without the ICA's annual lobbying efforts, we wouldn't have a voice in government to raise awareness and secure badly-needed research funding. They've made great stride... read more
I paid $50 to become a member and I have not received online access yet to materials promised to me. I want my money back or access to the documents promised to me like ICA Update, magazines, IC plate, restroom access card, brochures, and information sheets.I called twice and left several emails and have not heard anything back!!! I am upset. My name is Jessica Cohen.
I've had IC for over twenty hears now, and the Interstitial Cystitis Association has been there for me from almost the beginning (I wasn't diagnosed until about three years in to having symptoms). They were instrumental in helping me get a diagnosis and find providers who could help me. In addition, they assisted me in getting the word out about my support group for people living with IC, gave me opportunities to raise awareness of the condition, and helped shaped me as the IC advocate that I am today. I am beyond grateful!
The Interstitial Cystitis Association has been really valuable to me as a practitioner trying to learn more about interstitial cystitis. The website is full of useful information that I think would also be helpful for many patients.
Horrible horrible people. I have severe ic. If has had such a hard impact on my life. My dr suggested looking into disability. For fifty dollars I ordered the ic disability packet. It's been weeks and I never got the packet. I've emailed three times and called the number on their website which I believe to be a bogus number. Three other people also have recently had this happen to them as well. It's disgusting that a organization supposedly built on supporting and advocating for people with ic are actually using their condit... read more
Frequently asked questions about Interstitial Cystitis Association
How is Interstitial Cystitis Association rated?
Interstitial Cystitis Association has a 3.2 star rating with 5 reviews.
When is Interstitial Cystitis Association open?
Interstitial Cystitis Association is closed now. It will open at 9:00 a.m.
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